“Don’t get suspicious,” our 8-year-old daughter said as she casually disclosed her jaw pain. She was prepared for my anxiety. We’ve already buried one daughter and this one had a two-year span of chronic health issues that left me teetering on the edge of a nervous breakdown. After a mostly problem-free summer, she started with new symptoms weekly for the past few months.
I don’t know how to suppress fear that tastes metallic and releases chemical pheromones through my arm pits that make me smell like a fetid mammal, but I know every time our daughter starts having chronic symptoms, that fear pounces like the demon it is.
I’ve had occasional generalized anxiety, but all my centering and grounding and Scripture-reciting escape me when this kind of fear clutches my chest. I try to hide it from my children, but they can sense the change in my voice and demeanor. It’s as if they watch my body turn to jelly.
Then I feel guilty, because I’m a Believer and I’m supposed to pray prayers of faith, to trust in God’s goodness. But here’s the thing, I don’t trust God to answer my prayers anymore. Not always, anyway. And not the way I want Him too. I only trust that He is with me in whatever lies ahead.
I learned God wasn’t a Wish-King when my 6-year-old self begged Him to bring my Daddy home, but he never came. Or when I begged Him to let my daughter live and she died anyway.
I learned God sometimes answers prayers when my teenaged brother was riding his bicycle and was hit by a car, causing traumatic brain injury and coma. Doctors said if he survived, he would be in a vegetative state his entire life, but instead he’s a college graduate and has a wonderful family and career. I learned God sometimes answers prayer the following year on that same brother’s birthday. Mom was on her bicycle and was hit by a car. She received life-saving pints of her own blood she’d recently donated.
I’m not privy to the naïveté of saying, “It will all work out, we just have to trust God’s best for us,” when my idea of best and His seem vastly different. But I have known His nearness in suffering and His presence in the Valley of the Shadow of Death. I pray the prayer of the father in the Gospel of Mark when he asked Jesus if it be possible to heal his son. Jesus said, if it’s possible? All things are possible if you believe. And the father cried, “I believe, Lord help my unbelief.”
Faith doesn’t come natural to me anymore, at least not in the sense of answered prayers. I have to choose to believe. And I can believe, because I know that ultimately I am held. And though I suffer various trials, my faith is being refined into something far more precious than gold. Though I do not always see or feel Him, I love Him.
We sit again in the pediatrician’s office, and the doctor says we might want to run some labs. I hold my little girl as they draw six tubes of blood from her skinny arm. She goes limp. Loses her color. Gets sick. I tell her she’s going to be okay while fear screams suffering and death in my head. I can’t stop the racing thoughts. It’s the same day my Daddy, who came back into my life as a young adult, gets an “aggressive lymphoma” diagnosis. Only two weeks after my 24-year-old cousin died.
I ask others to pray for us because my prayers seem to bounce off the ceiling. I hope for my daughter and weep for my daddy and battle fear that holds me captive. I fight guilt that tells me if I really believed, I wouldn’t be so scared. I am weary. I am tired. I am worn.
When the pediatrician’s phone number shows on my caller ID, I mumble hello around the cotton that seems to fill my mouth.
“How are you,” she asks.
“I don’t know,” I say breathlessly, “tell me how I am.”
“You’re good,” she replies. “We’re still waiting on some results, but most of the big scary things have been ruled out.”
There’s evidence of inflammation, but the remaining results we get next week might help guide us to answers. We’ll keep digging. My body feels like jelly again, this time from relief.
Like sinking into my favorite yellow arm chair, I fall into the lap of Perfect Love that casts out fear. This, this is a sensation I want to last. And in the moment, I’m thankful for a faith I can feel.